Family Members’ Handling of Challenging Behaviour of Adult Persons With Intellectual Disability at Home: Strategies That Worked and Alternatives Explored (69445)
Session: On Demand
Room: Virtual Video Presentation
Presentation Type:Virtual Presentation
Background: Caring for adult children with intellectual disabilities (ID) and managing their challenging behaviours (CB) has caused substantial burden for family members. Yet, knowledge of how these challenges are dealt with by parents and siblings when they reside in the same household with the ID person with CB remains scant. Aims: To describe the strategies adopted, support received and alternatives that have been explored by family members to continue caring for persons with ID and CB at home. Methods: This study adopted a qualitative approach using semi-structured interviews. Purposive sampling was used to recruit 15 parents and siblings who were living with a person with ID and CB at home. Thematic content analysis was used. Results: Participants described many aspects of CB and how it was handled. They spoke of prevention of CB, and support received from extended families, community and organisations. While there are no “always-workable” strategies of managing CB, their main concerns were to avoid confronting persons with ID and prevent them and other family members from physical harm. Some participants explored alternative ways of doing things differently such as psychological readjustment and moderating temperaments to better equip themselves to continue the caring process. Conclusion: This study has described lived family experiences of continuous care and tackling CB of adults with ID living at home. These voices have not been prominent in the research literature to this point. The findings of this study highlighted high demands for provision of various community services for these families.
Authors:
Alice N. L. Kwong, School of Health Sciences, Caritas Institute of Higher Education, Hong Kong
Lisa P. L. Low, School of Health Sciences, Caritas Institute of Higher Education, Hong Kong
Angela H.Y. Cheng, School of Health Sciences, Caritas Institute of Higher Education, Hong Kong
Phyllis K.S. Wong, Department of Social Work, Chinese University of Hong Kong, Hong Kong
Mimi M.H. Tiu, School of Nursing, St. Teresa’s Hospital, Hong Kong
Maggie Y.C. Wong, School of Health Sciences, Caritas Institute of Higher Education, Hong Kong
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